Resources and support for Thalassemia
Thalassemia Monitoring
The Thalassemia Monitoring Guide offers expert-based recommendations for managing adult non–transfusion-dependent patients. This includes schedules to track disease progression and monitor complications as well as conditional interventions that can support patient needs.
myAgios Patient Support Services
A customized support program for your patients living with thalassemia
myAgios has a dedicated team of Clinical Nurse Educators* (CNEs) on staff who work closely with patients, families, and care teams to provide education and resources to support patients in their thalassemia journey.
myAgios CNEs can offer your patients:
- Individualized support, in person or virtually, to meet your patient where they are in their thalassemia journey
- Educational resources to better understand their disease
- Connections with others in the thalassemia community to share their experiences
- Educational webinars to hear from thalassemia specialists and other patients
For more information, call our Agios team directly. Mon-Fri, 8 AM to 8 PM ET: 1-877-77-AGIOS (1‑877‑772‑4467).
*A CNE does not provide medical advice.
Expert Perspectives: Thalassemia Insights You Can Trust
Explore this series of short videos featuring leading experts in thalassemia care
Dive into essential topics like pathophysiology, complications, and monitoring strategies for both non–transfusion-dependent (NTD) and transfusion-dependent (TD) thalassemia, offering valuable insights to enhance your understanding of the disease and patient care approach.
Monitor complications to improve impact on patient QOL
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